I find it amazing that you can go decades in life, with supposed professionals (Doctors) telling you what to do to stay healthy, treating you and basically not looking for anything more than the average illness.
Then you start getting ill more often, the illnesses are worse than they were in the past and finally the doctors start to worry. Yes, as an individual it is your duty to make sure you are getting the best health care, but we are supposed to rely on these Doctors to take care of us. Sometimes they just don’t know.
Anyway, it’s hard for me to go into any of this without being mad (a little bit mad) at my various Doctors, but today begins a new era (hopefully). I go in for my first infusion of immunoglobins. This infusion should make me feel better, keep me healthy and correct some problems that I have lived with all my life. The catch…it’s only good for 3 to 4 weeks. So in about a month, I do it again…and again….and again…for the rest of my life. Once a month.
Of course we have advances in medicine to look forward to, the possibility of doing sub cutaneous injections at home and maybe possibly by some super slim chance I could be one of the select few who actually rebuilds a normal immune system and can stop getting infusions.
Now one more gripe, if my God damn insurance company would have approved these 3 months ago when we first requested I most likely would not have been sick like I was (look a few posts back for pictures and some details). They were sure quick to approve these infusions after my costly hospital stay.
I of course don’t look forward to having an IV in my arm today for 2 – 4 hours. I mean it’s only been a week that I have been without some sort of line in my arm after having some line in for about a month. I guess I have 4 weeks of no IV to look forward to after today (hopefully).
So wish me luck, I am a little nervous, but at the same time I am excited about feeling better, and being healthy. It has been a very long time…well let me correct that, it has been NEVER. So this will all be new to me. I get to be like the majority of you, I get to see what it’s like to be “normal.” YES!